Every spring, the cystic fibrosis community comes together for National Volunteer Week. We are so grateful for our incredible volunteers and their dedication to the CF community.
During National Volunteer Week, April 20 – 26, we recognize and thank our incredible volunteers for their dedication and commitment to the CF community. From advocating, researching, connecting, fundraising, and lending a helping hand — every contribution makes a difference. A volunteer is anyone who gives back to the CF community. From those living with CF and their family and friends, to clinicians and researchers, to corporate champions — all your contributions make a difference, and we are grateful.
Read Volunteer Stories
Our volunteers share their experiences on the CF Community Blog:
Volunteer Spotlight
While we all volunteer in different ways, we are joined by one mission. Here are just a few of the outstanding volunteers who are working to make CF stand for cure found.
Heart of America Chapter
Terry is a treasured, loyal supporter of the CF Foundation. She has been an outstanding Great Strides team leader, in honor of her daughter Katherine, for over 11 years. Terry also donates her time and talent to the Kansas City Great Strides Walk, the Shoot for the Cure, and March on the Hill. She is kind, helpful, hardworking and we are grateful to have her support.
Louisiana/Mississippi Chapter
Hannah is a Great Strides Team Leader and emcees our Acadiana's Finest and Great Strides Lafayette events. She has attended VLC, and spoken at events about her experience losing her spouse who had CF. We are so grateful for everything she does!
Minnesota/Dakotas Chapter
This couple hosts their own golf event, attends most Tomorrow's Leaders meetings, activated Helen Charles to be our Advocacy Captain, fundraises for Great Strides, and mentors new parents within the CF community. We are so grateful for their support!
Greater New York Chapter
As a part of the Breathe Team, John has crossed the finish line in New York twice, completed the BMW Berlin Marathon, completed the Tokyo Marathon, and is heading to Paris to do it all again. Even without a direct connection to CF, John has recruited friends and family to join him in his running and fundraising efforts and has become a beloved member of our Breathie family.
Northern New England Chapter
Laurie has been a dedicated volunteer for our chapter for over 25 years. She's a CF Mom who has done it all, including being a Great Strides Committee member, a Team Leader, our Walk Emcee, an advocate and Congressional Captain, and an integral part of the patient/family advisory committee.
New Jersey Chapter
Meagan, a CF Mom, has been involved with Great Strides since 2005 when her daughter Chloe was just a year old. Over the past 20 years, Meagan has achieved incredible success in fundraising, including through third-party events & passion-driven initiatives. We’re excited to see what Team Chloe will accomplish in 2025!
Caleigh has been a repeat contributor to the Foundation's community conferences, including serving as a 2025 BreatheCon Co- Chair. As a 2024 Impact Grant recipient, she created a monthly podcast about personal stories, professional insights, and the latest advancements related to CF. Through Community Voice, Caleigh has served on the Lung Transplant Advisory Group, and as a CF Peer Connect mentor, she offers her time to provide on-on-one support. We are so grateful for everything she does!
Eastern Oklahoma Chapter
Charles is chair of our Grampions program, a member of our board of directors, and financially supports Great Strides, Dinner Dance, and the Golf Tournament. He is also a Legacy Society Member, attends VLC, and has attended the Boston Lab Tour. We are so grateful for his support!
Georgia Chapter
Peyton and the ATO Fraternity has been a powerhouse for our chapter, raising over $116,000 in 2024 through Tau Tug. Their creative fundraising efforts and dedication to our mission set them apart. They have become an active part of the chapter, serving on event committees, leadership teams, and fully immersing themselves in our cause.
Northern California Chapter
As the Taste for a Cure Chair, Melissa plays a pivotal role in the success of this annual event. She is also an instrumental volunteer at our Breath of Life Gala, working alongside her husband, Nate, to support the auction and ensure everything runs smoothly. Additionally, Melissa helps organize quarterly CF Foundation Cares events, providing invaluable opportunities for CF parents to connect.
Brandon is one of the longest serving Community Voice members, participating in key projects like workgroups associated with Reproductive Genetic Counseling Interviews and the SHARING workgroup. He recently served as a co-chair at BreatheCon 2025, demonstrating an unwavering commitment to creating an inclusive event where all experiences in the community were represented.