New Study Finds More with CF Struggle to Afford Care
| 2 min read

A growing number of CF patients are having difficulty affording the cost of their medical care, a recent study found. 

The online survey of cystic fibrosis patients, conducted annually by Shugoll Research since 2007, gathers information on health coverage, out-of-pocket expenses and major financial concerns faced by people with cystic fibrosis.

While more than 98 percent of people with CF have at least one type of insurance, 1 in 4 have delayed care or skipped treatments due to cost. Premium rates, deductibles, out-of-pocket expenses and co-payments have all increased steadily since 2007, with almost half of those surveyed paying over $300 per month in premium costs, according to those who responded.

To help CF patients and families combat cost and coverage obstacles, the CF Foundation has comprehensive patient assistance resources, including the Mutation Analysis Program (MAP), established earlier this year. The free program helps people with CF determine which gene mutations they have, which can help in making treatment decisions with their provider.

“We know that managing this disease can be a challenge and, oftentimes, overwhelming,” said Robert J. Beall, Ph.D., president and CEO of the Foundation. “At the Cystic Fibrosis Foundation, we are committed not just to developing new drugs, but also to helping patients get access to the care and treatment they need to live longer, healthier lives.”

For more information or questions about the survey, email

Explore the Foundation's patient assistance resources.

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