Insurance Coverage Remains a Top Concern for People with Cystic Fibrosis

Lack of insurance coverage for cystic fibrosis-related medications remains a top concern for people with CF and their families, a recent study found.

| 2 min read

In an online survey of more than 1,500 people with CF and their families, 45 percent said they worried about insurance companies not covering specific medications - a 6 percent increase from 2013.

The annual study, sponsored by the Cystic Fibrosis Foundation, gathers information on health coverage, out-of-pocket expenses and major financial concerns faced by people with cystic fibrosis.

The vast majority of people with CF have at least one form of insurance, but nearly a quarter still say they have delayed getting medical care or skipped treatment because they worried about the costs. Additionally, the number of individuals with annual prescription deductibles of $500 or more has  increased by 17 percent since 2009.

The Cystic Fibrosis Foundation will continue to educate and engage both private and public insurers in collaboration with CF researchers and health care providers to help people with CF get access to approved CF therapies.

The Foundation also offers services and resources to help people with CF and their families navigate insurance and coverage challenges through its Patient Assistance Resource Center (PARC).

For more information about the survey, email

Share this article
About the CF Foundation | Public Policy | Insurance
Recent news
CF Foundation Adapts Registry Reporting to New Race-Neutral Standards
News | 5 min read
Nearly 350 Advocates Urge Congressional Action During 17th Annual March on the Hill
News | 3 min read
Cystic Fibrosis Foundation Invests an Additional $5 Million in BiomX
News | 2 min read
Stay up to date with The Foundation

Sign up for our newsletter to get all of the latest news from The Foundation right in your inbox.