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News and Press Releases
Health Care Reform | Advocacy Declaración de Cystic Fibrosis Foundation sobre planes de triaje respecto al COVID-19

Un diagnóstico de fibrosis quística no debe descalificar a una persona para recibir atención que pueda salvarle la vida.

April 24, 2020 | 3 min read
Our Advocacy Work | Infection Prevention and Control | Germs Cystic Fibrosis Foundation Statement on COVID-19 Triage Plans

A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.

April 24, 2020 | 2 min read
Advocacy | Our Advocacy Work The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

April 23, 2020 | 2 min read
Research | About the CF Foundation | Clinical Trials | Our Research Approach CF Foundation Announces up to $5M Award to Support First-Ever Controlled Clinical Study of Phage Therapy in Cystic Fibrosis

Study reaffirms the Foundation's commitment to advance solutions to the growing challenge of antibiotic resistance and evaluate the use of phage to treat infections for people with CF

March 18, 2020 | 4 min read
Research | Clinical Trials | Our Research Approach CF Foundation Awards Funding for First-Ever Controlled Clinical Study of Phage Therapy in CF

The Cystic Fibrosis Foundation awarded up to $5 million to Armata Pharmaceuticals for the first-ever controlled clinical study of phage therapy in CF, reaffirming the Foundation's commitment to advance innovative solutions to the growing challenge of antibiotic resistance.

March 18, 2020 | 3 min read
Advocacy | Our Advocacy Work More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

March 2, 2020 | 3 min read
CFTR Modulators ICER Issues Draft Evidence Report for Assessment of Trikafta

The Institute for Clinical and Economic Review (ICER) recently posted a draft evidence report to outline their initial assessment of the clinical effectiveness and value of CFTR modulators, including elexacaftor/tezacaftor/ivacaftor (TrikaftaTM). The document is open for public comment through March 18.

 

Feb. 20, 2020 | 2 min read
Research | Our Research Approach Cystic Fibrosis Foundation Supports Development of Non-Porcine Enzyme Therapy

The Cystic Fibrosis Foundation has entered into an agreement with Synspira Therapeutics Inc. to develop a non-porcine enzyme replacement therapy to offer an alternative to people with cystic fibrosis who cannot digest food properly.

Feb. 12, 2020 | 2 min read
Get Involved Choate Construction Named the Top 2019 National Corporate Team

Choate Construction's National Corporate Team raised over $670,000 for the Cystic Fibrosis Foundation in 2019, serving as a role model for corporations looking to integrate philanthropy into their business model.

Jan. 24, 2020 | 3 min read
Drug Pipeline | About the CF Foundation CF Foundation Awards Leading Research Organization Funding to Screen for Potential B. Cepacia Therapy

The Cystic Fibrosis Foundation awarded nearly $700,000 to Calibr, the drug discovery and development arm of Scripps Research, to screen for a compound that could be used to treat Burkholderia cepacia complex infections. 

Jan. 14, 2020 | 2 min read