News and Press Releases
Health Care Reform | Advocacy CF Foundation Responds to Court Decision to Overturn the ACA

On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

Dec. 17, 2018 | 3 min read
Health Care Reform | Advocacy CF Foundation Signs on to Amicus Brief in Legal Challenge to Short-Term Health Insurance Rule

The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.

Oct. 8, 2018 | 3 min read
Health Care Reform | Advocacy | Insurance 27 Patient Groups Express Disappointment in Final Rule on Short-Term, Limited-Duration Insurance Plans

Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.

Aug. 2, 2018 | 3 min read
Advocacy CF Teen Advocates Visit Capitol Hill for 10th Annual Teen Advocacy Day

More than 200 advocates from 32 states traveled to Washington, D.C., on June 28 for the Cystic Fibrosis Foundation's 10th annual Teen Advocacy Day, which enabled teens to meet with their elected officials on Capitol Hill to fight for access to high-quality, specialized care for their friends and loved ones living with CF.

July 5, 2018 | 3 min read
Advocacy CF Foundation Responds to Justice Department Decision

The Department of Justice's decision to no longer defend critical provisions of the Affordable Care Act (ACA) risks health insurance coverage for people with cystic fibrosis and other pre-existing conditions.

June 15, 2018 | 2 min read
Research | Drug Pipeline | Advocacy President Trump Signs Right to Try Legislation Into Law

Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.

May 31, 2018 | 3 min read
Advocacy CF Foundation Hosts Congressional Briefing on Protecting People With CF and Other Pre-Existing Conditions

The event, held at the U.S. Capitol Visitor Center, aimed to educate members of Congress on the impact of the proposed rule to expand short-term insurance plans on people with serious and chronic health conditions. 

April 13, 2018 | 3 min read
Research | Drug Pipeline | Advocacy CF Foundation Opposes Right to Try Legislation

The Cystic Fibrosis Foundation recently signed on to a letter with more than 70 organizations in opposition to the Right to Try Act, which passed in the House of Representatives earlier this month.

April 5, 2018 | 3 min read
Advocacy CF Foundation Welcomes New National Advocacy Chairs

Chad Riedy and Jaclyn and Drew Strube will help lead the Cystic Fibrosis Foundation's advocacy work to inspire action and help shape public policies that help people with CF access high-quality, specialized care.

March 28, 2018 | 3 min read
Advocacy | Our Advocacy Work In D.C. and Nationwide, CF Advocates Lobby Congress During 2018 March on the Hill

More than 200 CF advocates from 47 states held nearly 400 meetings with members of Congress and their staff, and more than 850 advocates from across the country called their members of Congress as part of the CF Foundation's first March on the Hill online Day of Action.

March 19, 2018 | 3 min read