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News and Press Releases
About the CF Foundation | Public Policy Statement from the Cystic Fibrosis Foundation on the House Energy and Commerce Committee’s Health Subcommittee Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

| 5 min read
About the CF Foundation | Public Policy | Drug Pipeline Statement from the Cystic Fibrosis Foundation on Senate HELP Committee’s Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

| 3 min read
About the CF Foundation Cystic Fibrosis Foundation Awarded First Place in YouTube Nonprofit Video Contest

The CF Foundation’s “Adding Tomorrows” Video Selected From More Than 1,000 entries; To Be Featured on YouTube’s Homepage

| 3 min read
About the CF Foundation | Public Policy | Advocacy CF Foundation Advocates March on the Hill to Attract Support from Members of Congress

On March 8, more than 40 Cystic Fibrosis Foundation volunteers from across the nation came together on Capitol Hill to speak out on behalf of their friends and family members with cystic fibrosis.

| 2 min read
About the CF Foundation | Drug Pipeline | Medications FDA Approves Ultresa — Pancreatic Enzyme Therapy for People with CF

The U.S. Food and Drug Administration (FDA) announced that it has approved Ultresa™ delayed-release capsules, a pancreatic enzyme replacement therapy. Ultresa (pancrelipase) is manufactured by Aptalis Pharma.

| 1 min read
About the CF Foundation | CFTR Modulators The Cystic Fibrosis Foundation Applauds FDA Approval of Kalydeco™, First Drug to Address the Underlying Cause of Cystic Fibrosis

Kalydeco Marks the Latest Success of the Cystic Fibrosis Foundation’s Venture Philanthropy Model

| 5 min read