Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.
May 31, 2018
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3 min read
The event, held at the U.S. Capitol Visitor Center, aimed to educate members of Congress on the impact of the proposed rule to expand short-term insurance plans on people with serious and chronic health conditions.
April 13, 2018
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3 min read
The Cystic Fibrosis Foundation recently signed on to a letter with more than 70 organizations in opposition to the Right to Try Act, which passed in the House of Representatives earlier this month.
April 5, 2018
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3 min read
Chad Riedy and Jaclyn and Drew Strube will help lead the Cystic Fibrosis Foundation's advocacy work to inspire action and help shape public policies that help people with CF access high-quality, specialized care.
March 28, 2018
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3 min read
More than 200 CF advocates from 47 states held nearly 400 meetings with members of Congress and their staff, and more than 850 advocates from across the country called their members of Congress as part of the CF Foundation's first March on the Hill online Day of Action.
March 19, 2018
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3 min read
The package of tax reforms expected to be signed into law includes several provisions that will impact some people with cystic fibrosis.
Dec. 21, 2017
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3 min read
A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.
Dec. 20, 2017
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2 min read
The Cystic Fibrosis Foundation awarded U.S. Sen. Susan Collins (R-Maine) the Breath of Life Legislator Award on Nov. 3 for her leadership in ensuring that people with cystic fibrosis have access to the adequate, affordable care they need to live full and healthy lives.
Nov. 6, 2017
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3 min read
The organizations urge continued protections for patients.
Sept. 7, 2017
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2 min read
Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.
July 25, 2017
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2 min read