In response to the debate over access to health care in Washington, D.C., the Washington Post published a letter to the editor by Robert J. Beall, Ph.D., president and CEO of the CF Foundation. The letter, which discusses the unique health care needs of people with CF, reflects the Foundation's efforts to ensure that people with CF have a voice in this critical discussion.
“The challenge faced by underinsured cystic fibrosis patients,” Dr. Beall writes, “mirrors the challenges faced by the underinsured population as a whole. This is a key part of the debate and too important to ignore.”
As elected officials shape the health care system, the Foundation maintains its focus on patients-making certain they receive the innovative therapies they need to live.
To read the letter as it appears in washingtonpost.com, click here (you may have to register). Or if you prefer, please see the text of the letter below.
Chronically Ill and Underinsured
Monday, November 5, 2007; Page A18
As our political leaders grapple with the important issue of providing health coverage for all children ["Vote Nearing in Battle Over Kids' Health Care," news story, Oct. 14], there is an equally challenging and often overlooked piece of the puzzle: the burden faced by people -- often with rare or
At the Cystic Fibrosis Foundation, we are developing therapies that could one day lead to a cure for cystic fibrosis, a fatal
More troubling still are those who have reached a lifetime maximum allowance on their health plans by their early 20s.
The challenge faced by underinsured cystic fibrosis patients mirrors the challenges faced by the underinsured population as a whole. This is a key part of the debate and too important to ignore.
ROBERT J. BEALL
President and Chief Executive
Cystic Fibrosis Foundation