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As I continue to realize the benefits of Trikafta® and my daughter grows up and needs me less, I feel as though I’m losing key parts of my identity — being a person with cystic fibrosis and a mother. However, I’m also finding I have room to let myself grow and explore different sides of myself.
Learning that my daughter has cystic fibrosis has been a struggle for me and my family, especially as I deal with postpartum depression.
I began fundraising and raising CF awareness soon after my son, Aidan, was diagnosed as a baby. After years of successful fundraiser walks, Aidan asked me to stop — opening my eyes to the difference between being a mom of someone with CF and being the person who is living with CF.
After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
The CF Foundation is the world’s leader in the search for a cure for cystic fibrosis. We are dedicated to attacking CF from every angle. Help us by making a donation today. Every gift we receive – big or small – helps us get one step closer to finding a cure for cystic fibrosis.
By participating in one of our many fundraising events — or starting your own — you can bring together friends, family, and others you know to raise funds in support of the CF Foundation's mission: to find a cure for cystic fibrosis.
You're invited to join the 65 Roses® Club, a special group of Cystic Fibrosis Foundation donors dedicated to finding a cure for CF by providing monthly support. There are many benefits to becoming a member of the 65 Roses® Club, such as receiving a special biannual newsletter, IMPACT, our annual 65 Roses® calendar and exclusive invitations to your local chapter's events. Help accelerate progress and join today!
Having a friend with cystic fibrosis has made me determined to do all that I can to help her fight for a cure. That includes leading the charge for making legacy donations to the Cystic Fibrosis Foundation.