Thinking of a food elimination diet? I tried one and learned some lessons along the way.
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People often envied my skinniness, but they didn't realize that CF made it difficult for me to want to eat -- or to get enough nutrients from -- the food that I did.
After my grandmother's health improved on a plant-based diet, I decided to try it for myself with the help of my cystic fibrosis care team dietitian. Not only are my lung function and energy better, but my weight is stable too.
My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.
Caring for somebody with CF used to be a lonely journey. But that changed after I attended the first Volunteer Leadership Conference (VLC). I have attended the conference every year, and this year as a co-chair of the 15th VLC, I'm welcoming everybody to livestream it so we can share and learn together.
After my son was diagnosed with cystic fibrosis, I knew I wanted to do more to fight for a cure. That's when I decided to start Charleston Mom Prom, a Passion Fundraising event that has raised thousands of dollars for CF, while allowing us moms to have a night on the town.
The Cystic Fibrosis Foundation would like to thank New York Giants placekicker Josh Brown and Tommy Bahama for their efforts in supporting the search for a cure for cystic fibrosis.
Although my wife, Wendy, passed away eight years ago, I continue to raise funds for cystic fibrosis to keep her memory alive.
It was the year of 1957 when Phyllis Kossoff, one of the earliest volunteers of the Cystic Fibrosis Foundation and mother of a child with CF, found herself standing before a room of women, asking for help.
Tommy Danger didn't know it then, but the day his best friend's son was born was the day Tommy's life changed forever.