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Press Release
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April 18, 2022
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6 min read
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. Keep reading to learn how to treat and live with CF.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.
Child just diagnosed? You may have a lot of feelings and questions, and may not know where to start. We've pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.
You may have a lot of questions, and may not know where to start. While there is a wealth of information available, we pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.