Since I could remember, my sister shared her CF story to raise awareness, and she inspired me to do the same. Now, with this year's Teen Advocacy Day, we finally get to advocate together.
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Although I had heard of cystic fibrosis, I never knew anything about the disease until a chance meeting with a member of the CF community during a networking event. Since then, I have provided donations to CF events and am in awe of the determination and attitude that people with CF have about life.
At ResearchCon 2020, President and CEO Dr. Mike Boyle answered some of the community's top questions on COVID-19. Here's your guide to hearing the answers to your questions.
For those who haven't experienced it, the Cystic Fibrosis Foundation's annual Volunteer Leadership Conference is a magical time when everyone can get together and share moments of hardship and triumph in the fight against cystic fibrosis.
CF Foundation Public Policy interns Shannon, Oakey and Erin share highlights from attending Teen Advocacy Day 2015, where 62 teens from across the country traveled to Washington, D.C., to meet with their Representatives and advocate on behalf of their siblings, friends and relatives with CF.
Alexa was my best friend: the class clown, the leader of our wolf pack and the greatest sidekick I could ever have. Every day I spent with her was a blessing. I will cherish our memories until we meet again.
Here's a snapshot of six works we're spotlighting from members of the CF community. Whether they shared their story through writing or through song, their work has been shaped by their experiences of living with CF.
My partner, Jan, was a CF fighter for 50 years. She lived an amazing life and celebrated her lung transplant to the fullest. She passed away a few months ago and I'm honored to keep her fight against CF going strong.
Living with cystic fibrosis, I owe gratitude to the friends, family, and care team members who love me, support me, and make my life easier. Join me in letting those who support you know how much you appreciate them.
Even though nobody close to me had cystic fibrosis, I decided to try to make a difference in the lives of people with CF.