Lukas Daskas found something in the Cystic Fibrosis Foundation's Teen Advocacy Day that he had been searching for his whole life: a sense of community and understanding by others who know what it's like watching a loved one battle cystic fibrosis.
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My husband and I had always seen ourselves raising our family in a small western town. But after our daughter Annie was born and diagnosed with cystic fibrosis, we realized that we might have to let go of the rural life that we had imagined.
Navigating insurance for the first time can be difficult, especially if you have cystic fibrosis. Luckily, there are resources out there that can help.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
My struggle to cope with my CF brought me to some dark places. The support of my care team helped me come to the light.
The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.
The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.
Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.