Running amidst the beauty of the Kansas countryside helps improve my lung function and mood and has even kindled a passion inside me for the environment.
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After fighting an awful infection, I had written off my dreams as 'impossible.' But after encouragement from my family and plenty of training, I made it my mission to not let CF stand in my way.
When I am sick, I find creative ways to exercise, even if it's just walking a short lap around the house to keep my strength up. I also make sure that I eat well and have a game plan for getting good food if I get sent to a hospital.
Watch how teens advocated on behalf of their friends and family with cystic fibrosis on Capitol Hill during the 10th annual Teen Advocacy Day.
For people with cystic fibrosis, our story is the most powerful tool we have to stand up for ourselves and fight for our needs. Although I can't always be there to share my story with legislators in person, I'll be joining many others from the CF community for our first March on the Hill Online Day of Action to make my voice heard.
While we often see politicians on the campaign trail, there's another side to them that the public doesn't always see. By sharing my story, I've made real connections with my state representatives to help them better understand CF and positively impact my son's future.
As a parent of two young adults with cystic fibrosis, Peter knows the financial challenges and obstacles people with the disease face when trying to access quality, affordable care.
I got into advocacy to work for the common good of all people with cystic fibrosis. Little did I know that this work would help me in a very personal way.
Although it took me a while to gravitate toward yoga, I have found that it really helps me manage my mental and physical health. In honor of International Yoga Day on June 21, I share the benefits of practicing yoga and demonstrate my favorite upper body stretches.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.