With a late diagnosis, I had every reason to feel hopeless and alone, but getting involved and connecting to others truly gives me hope for my future.
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People in the CF community do so much every day. Beyond doing treatments, going to clinic appointments, and doing countless other things to stay healthy, some of you are writing books and music to help others with CF and give thanks for your loved ones. Read about what three people with CF have created this year.
The Cystic Fibrosis Foundation has awarded the 2016 Impact Grants to individuals or organizations making a positive impact on the cystic fibrosis community.
Weeks after my son was diagnosed with cystic fibrosis, I knocked on my local chapter's door to ask what I could do to make a difference.
Many of us experienced powerful moments during last year's virtual BreatheCon event. We hope you'll join us for this year's BreatheCon that will allow you to share your struggles and triumphs with other people who have CF.
Unless you have cystic fibrosis or live with someone who does, it's hard to truly understand the full impact of this disease. Through the power of storytelling, these CF community members are helping to bridge that gap of understanding. Check out the latest books and films created by people intimately familiar with CF.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.
On Mar. 11, the Cystic Fibrosis Foundation presented the Alex, Jena and Dream Big Awards to leaders in the CF community for their dedication to the Foundation's mission of finding a cure.
Ginger Birnbaum and Mike Beatty lead efforts in Dallas for banner conference -- "teamMATEs for a Cure.”
Two 2017 Volunteer Leadership Conference attendees, one a veteran attendee and another a newcomer, reflect on their experiences in Dallas, Texas.