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Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
The Cystic Fibrosis Therapeutics Development Network is the largest CF clinical trials network in the world. We bring together experts from across the country to evaluate the safety and effectiveness of new CF therapies through clinical studies.
Nutritional support is a vital component of care for patients with cystic fibrosis. These recommendations cover caloric intake, dosing for pancreatic enzyme replacement therapy, and monitoring growth in childhood and weight status in patients of all ages.
9 min read
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
To treat cystic fibrosis, scientists are exploring ways to use gene editing, which would correct mutations in the CFTR gene, or gene therapy, which would provide a correct copy of the CFTR gene to cells. First, they must find a way to deliver the treatment to the right cells.