A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
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Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.
Meet my son Kiran, a happy, charming and adorable 18-month-old with CF. We're telling his story this #GivingTuesday to raise awareness and funds for the CF Foundation. Donate today.
As a member of the IT department at the CF Foundation, it's easy to sometimes feel disconnected from the people we serve. This is why the Foundation's Speaker Series, which recently featured the story of Sara and Michael Dun, is so meaningful.
Through a new Speaker Series, the Foundation invites people with cystic fibrosis and their families to the national office to share their stories and help Foundation employees better connect with members of our community.
Living with cystic fibrosis, your dreams for the future can be a little hazy. But while attending my grandmother's 90th birthday celebration recently, I was struck by an image of myself that I had never seen before: myself in the distant future.
For the first time, the Cystic Fibrosis Foundation invited non-CF experts to its annual research conference to meet with CF researchers. The conference -- New Technologies Advancing Toward a One-Time Cure -- in Savannah last month focused on the challenges being faced in gene editing, gene delivery and stem-cell biology and laid the foundation for new collaborations.
The CF Foundation's CEO reflects on the passing of Mary Weiss, who helped blaze new trails in the fight against CF.
When I was born, my parents were told that I would not live to see my 18th birthday. While I've had my challenges with cystic fibrosis, I've reached so many meaningful milestones in my life, including getting married. I'm so grateful for the “tomorrows” I've had.
When my husband and I were given the thumbs-up from my cystic fibrosis doctor to start trying for our own family, it felt like a small victory 12 years in the making. After being referred to a maternal-fetal medicine physician for a preconception consultation, we are finally taking our first steps toward parenthood.