As some people's pandemic fears subside and businesses start to reopen in parts of the U.S., people with cystic fibrosis like me are maintaining their social distance. We still need to be extra cautious because of the threat COVID-19 poses to people with an underlying condition.
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Deciding what activities are safe enough for my family has been daunting during this pandemic. But with CF, I'm reminded that I've been doing this for years and I'm grateful for a tool to help me think through my decisions and make the best choices for my family.
Thanks to COVID-19, a work furlough forced me to slow down the pace of my life and I'm okay with that. Here's how I've let go of needing to be productive during this time.
The recent birth of my son brought me news that I never expected -- a diagnosis of cystic fibrosis.
COVID-19 presented all of us with a great deal of uncertainty. Fortunately, several sessions at the North American Cystic Fibrosis Conference helped provide some data -- and some relief.
I'm a big proponent of participating in clinical research, but COVID-19 made me think twice about participating in a clinical trial that required six hospital visits. However, a screening visit reassured me that the researchers were taking all the necessary precautions.
Because of the threat to my health caused by COVID-19, I had to give up my dream job as a nurse practitioner. Now I am asking for paid leave expansion.
Summer 2020 is simply not like the others. For me, a teacher and CF spouse, the unknown is taking away some of the normal summer bliss. But it's been hardest on my husband who feels he is holding us back as stores and restaurants gradually reopen.
As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.
COVID-19 has created a lot of emotional and financial uncertainty among people with cystic fibrosis and their families. Here are some tips to help with some of those challenges.