Since everyone in my graduating high school class knew each other by name, I'm guessing that everyone knew that I had CF. But it was never discussed. Rarely did anyone bring it up to me or ask me any questions, and that was just the way I wanted it.
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I have found that the limits cystic fibrosis imposes on my life are a bit like weather forecasts -- open to unexpected changes. Whether by hard-fought scientific advances, thoughtful (personal) planning, creative thinking or sheer luck, many of the limits of CF now come with beautiful possibilities attached.
I gravitated toward a career in health care almost without thinking about it. It has been rewarding, but it has cost me too.
I definitely attribute much of my good health to my support system. This disease would be much harder alone.
We asked -- and hundreds of you answered -- how you pass the time during long treatments. Check out what the CF community told us when we asked what makes you #morethanCF.
My advice to all of you … CONNECT, CONNECT, CONNECT with others who share your passion in the fight against cystic fibrosis.
In our first 2016 “Living Today” video, Wes Parsel, 27, talks about almost everyone's New Year resolution: exercise. The big difference is that he's been doing this his whole life, in addition to his daily treatment routine.
La fibrosis quística (FQ) es una enfermedad genética. Hace que el cuerpo produzca un moco que es demasiado espeso y pegajoso. El moco obstruye los conductos y otras vías de paso, lo cuál cause problemas, generalmente al respirar y dirigir los alimentos.
Trikafta® es el modulador más nuevo, un tipo de droga que actúa contribuyendo a corregir la proteína CFTR defectuosa. Trikafta tiene el potencial para ser mucho más eficaz que los moduladores actuales.
By learning about the implications of all transplant-related medications and treatments before undergoing a transplant, men with cystic fibrosis can avoid some of the harmful reproductive side effects and improve their ability to have biological children post-transplant.