La fibrosis quística (FQ) es una enfermedad genética. Escuche las presentaciones de los expertos, el Doctor Fadel Ruiz, director del centro de fibrosis quística de Baylor y el Doctor Carlos Milla, director del centro de fibrosis quística de Stanford y sus respuestas a las principales preguntas de la comunidad sobre terapias genéticas para la FQ. El panel fue moderado por Sylvia Mazuera, madre de dos hijos, el menor de los cuales tiene FQ.
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Even though I haven't cultured for nontuberculous mycobacteria, I was excited to learn more about the treatment for the bacteria in people with cystic fibrosis during the virtual session at the North American Cystic Fibrosis Conference.
Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.
Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.
People who are not used to isolation may feel bored during this pandemic-driven physical distancing. But people with cystic fibrosis are experts at keeping themselves busy and fulfilled at home.
With Five Feet Apart hitting theaters in March, we've been getting some questions about infection prevention control (IPC) and what the film might mean for the CF community. Here's what our CF center and hospital have been doing to support the IPC guidelines and encourage questions among our patients and families.
Having enjoyed good health most of my life, I gave little thought to cross-infection risk -- even though others in my family have cystic fibrosis. The birth of my son has me rethinking that.
The Cystic Fibrosis Foundation recently updated its Infection Prevention and Control Policy for all Foundation events, meetings and offices to protect the health of people with cystic fibrosis.