When Rickey Powell’s first child, Miles, was born, he never anticipated that Miles would spend nearly a month in the NICU. Miles was not gaining weight and, after several long weeks, was diagnosed with cystic fibrosis. Two years later, Rickey’s second child, Marley, was born. She, too, was born with CF.
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This year’s awardees showcase the diversity of journeys in the cystic fibrosis community.
Mascaro Construction employees have a strong track record of giving back to advance the CF Foundation’s mission. A giving culture is what the late founder, Jack Mascaro, first established when he started the highly successful company.
NextBreath is for people with cystic fibrosis who are living with advanced disease or experiencing lung health complications and for their family members and caregivers.
CF FamilyCon welcomes the whole CF family — people with cystic fibrosis and the friends and family who love them.
Tomorrow's Leaders is a community of young professionals who come together to make a difference for those living with cystic fibrosis while growing their network, making personal connections, and developing professional skills.
Recipients include five innovative programs from around the country that empower the CF community.
Ray Poole and Julie Riedy to lead efforts in Washington, D.C., for volunteer conference, Until CF Stands for Cure Found.
The Cystic Fibrosis Foundation presented five outstanding members of the CF community with awards at the 2019 Volunteer Leadership Conference. These included the Tomorrow's Leader Award, the Jena Award, the Alex Award, and the Dream Big Award.
To support a pair of colleagues' adoption of a baby boy, Christian, Merrill/Bank of America has raised more than $32,000 through their matching gifts program.