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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
In 2022, the community’s determination helped us achieve new milestones and fueled our mission for a cure for all. Read our annual report to learn more about our achievements this year, and about our continued work toward helping people with cystic fibrosis live long, fulfilling lives.
Our vendors play a vital role in helping us fulfill our mission at the Cystic Fibrosis Foundation. As such, we aim to build mutually beneficial relationships with all our vendors while holding them to the same high standards we hold ourselves to. Learn more about these standards, and find other helpful documents and information.
We hold ourselves accountable to our donors, volunteers, people with CF and their families, and the public. Learn about our governance and policies.
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
At the Cystic Fibrosis Foundation, we commit to equity, racial justice, diversity, and inclusion as core principles guiding our efforts to provide all people with CF the opportunity to live long, fulfilling lives.
The CF Foundation writes to Michigan’s House Committee on Insurance and Financial Services to provide comments on SB 483: The Prescription Drug Cost and Affordability Review Act, which would create a prescription drug affordability board in the state.
Ad hoc patient advocacy coalition provides comments to Pennsylvania’s Insurance Commission to inform decision making regarding the state’s essential health benefits benchmark plan.