In 2021, the CF Foundation, along with the CF community, reached new heights in the fight against cystic fibrosis. We are thrilled to present the year’s achievements in the 2021 Annual Report.
I am continuously inspired by the resilience of the cystic fibrosis community. In the face of another year of challenges, your determination has been vital to the tremendous progress we are making to support the development of transformative therapies for tomorrow and to help people with CF live their best lives today.
In 2021, we reached new heights, as we worked together to drive advances in three critical areas — Cure, Care, and Community.
The Cystic Fibrosis Foundation continued to invest boldly, funding the most promising science to accelerate treatments for the underlying cause of CF and to find a CURE for every person with the disease, no matter their mutations.
Our multidisciplinary care model continues to evolve to meet the changing needs of people with CF, while also putting the expertise of the individual living with CF at the center of the care team. Innovations in CF care will continue to improve on one of last year’s most remarkable achievements — attaining a median predicted survival of 50 years for people with CF. We expect to see life expectancy continue to climb as CFTR modulators become available to younger people with CF, including this year’s FDA approval of Trikafta® for children ages 6-11 moving us even closer to that goal.
As we make greater progress in improving health outcomes, we have sharpened our focus on addressing health inequities in the CF community and strengthened our commitment to embedding racial justice principles in all we do. Over the past year, we listened closely to Black, Hispanic, and other people of color about their experiences with CF. The perspectives that these community members generously shared will help guide the Foundation as we aim to help improve care, health outcomes, representation, and inclusion among all people with CF.
Recognizing the critical benefits of connection for the CF community, the Foundation created more opportunities to bring people together to learn and find support, facilitating more than 600 virtual and chapter events. From the hundreds who ROSE UP for a cure and walked in Great Strides, to the generous donors who supported our launch of our Milestones III: Driven by a Dream campaign, we are energized by your enthusiasm and commitment.
The force behind all these successes is the CF community, and your passion is what fuels our shared mission. I have no doubt that together we will move forward to achieve our highest goal of finding a cure and ensuring that no one person is defined by their CF.
Michael P. Boyle
President and CEO of the Cystic Fibrosis Foundation
Read this year’s report and celebrate the impact that we are making towards our mission — together.