When my daughter was born, her newborn screening indicated that it was unlikely she had CF. But after months of mysterious symptoms, a sweat test confirmed her diagnosis. This unlocked answers not only for my daughter, but for our entire family.
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The Drug Development Pipeline features an extensive list of drugs that are in development or approved for treating cystic fibrosis. For a drug or program to be shown on the pipeline, it must meet certain conditions.
3 min read
Newborn screening (NBS) is a program run by each state to identify babies born with certain health conditions, including cystic fibrosis. Although a sweat test should ultimately be done to rule out or confirm a CF diagnosis, NBS can help you and your health care providers take immediate steps to keep your child as healthy as possible.
5 min read
Child just diagnosed? You may have a lot of feelings and questions, and may not know where to start. We've pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.
You may have a lot of questions, and may not know where to start. While there is a wealth of information available, we pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.