How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.
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Many of the people I thought I could count on disappeared during a period when my health declined. Losing those people helped me discover that my real support network was made of the friends who stuck around and those I have met since.
According to social worker Kim Reno, removing critical health care protections in current law would be devastating for people with cystic fibrosis and their families.
Although having cystic fibrosis can lead to awkward situations, dealing with it with humor and grace has helped me put them in perspective.
Join us on May 21 at CF MiniCon: Transplant, a virtual event that will focus on transplants for adults with cystic fibrosis.
The European Commission has approved the use of the CF therapy Kalydeco™ for people with the G551D mutation ages 6 and older in the European Union.