As the mother of two girls with cystic fibrosis, the time-consuming routine can wear down on you and cause frustration. Although CF can be challenging, it's important that I keep my attitude toward the disease in check because I know it will ultimately shape how my kids approach their lives with CF.
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Two 2017 Volunteer Leadership Conference attendees, one a veteran attendee and another a newcomer, reflect on their experiences in Dallas, Texas.
Choate Construction's National Corporate Team raised over $670,000 for the Cystic Fibrosis Foundation in 2019, serving as a role model for corporations looking to integrate philanthropy into their business model.
The Cystic Fibrosis Foundation recently hosted the CFF Research Conference: Pushing the Frontiers, bringing together nearly 150 basic scientists, clinical researchers, graduate students and pharmaceutical company representatives to share information on recent advances and critical challenges in CF drug discovery and development.
When my son Sam passed away at the age of 9, people told me that the love we shared would never die. But, it wasn't until I received an unexplainable gift on the first Mother's Day after his passing that I truly believed it.
On the heels of exciting progress in the fight against CF, more than 500 of the Cystic Fibrosis Foundation's most dedicated volunteers, chapter staff and corporate supporters came together at the 12th annual CF Volunteer Leadership Conference, and hundreds more watched via live stream March 20-21.
The Cystic Fibrosis Foundation has awarded more than $23 million across 11 sites in its Research Development Program (RDP), a network of research centers that brings together top-notch scientists from different disciplines to apply their expertise to the challenges of treating cystic fibrosis.
At the 2015 North American Cystic Fibrosis Conference (NACFC) held on Oct. 8-10 in Phoenix, Arizona, the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care.
The cystic fibrosis community is a pretty spectacular bunch, whether you are living with this disease or helping to raise awareness and funds every day to fight for a cure. I'm excited to highlight a small sampling of the remarkable things you are doing in support of people with CF.
As Congress debates how to stabilize the health insurance marketplaces, several proposals would directly improve the ability of people with cystic fibrosis to access high quality, specialized care.