Many of us experienced powerful moments during last year's virtual BreatheCon event. We hope you'll join us for this year's BreatheCon that will allow you to share your struggles and triumphs with other people who have CF.
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This year, theratyping, the process of matching medications with mutations, enabled more people with cystic fibrosis who have rare mutations to benefit from modulators. In the first plenary at the NACFC, we heard more about how theratyping will be used, as well as other future advances coming in CF treatment.
When I first got an enteral feeding tube as a teenager, I had no idea how many doors it would open for both my health and my involvement with the cystic fibrosis community. Fifteen years later, here's how I'm doing today.
In today's post, Rusalka the Corgi talks about her role as a service dog for her mom with cystic fibrosis.
Burkholderia cepacia took a toll on me physically, but overcoming the emotional blow was even more difficult.
Unless you have cystic fibrosis or live with someone who does, it's hard to truly understand the full impact of this disease. Through the power of storytelling, these CF community members are helping to bridge that gap of understanding. Check out the latest books and films created by people intimately familiar with CF.
Here's how being open and honest about all my symptoms, cystic fibrosis-related or not, with my health care providers has improved my overall health care.
Being a mom is a tough job; being a CF mom is an even tougher job. But, finding ways to stay organized and maintain a routine has made it a bit easier.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.
During a health crisis, we can focus on our pain so much that we don't take time to acknowledge the pain of others.