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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Foundation and Legislative Supporters Pushed for Bill

Ten patient and provider groups, representing millions of Americans, issued the following statement in response to the release of the nonpartisan Congressional Budget Office's (CBO) scores of two pieces of health care reform legislation currently being considered by the U.S. Senate.

Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

Eight Patient/Consumer Groups Urge Senate to Start Over

Twelve patient/consumer groups urge senate to reject the bill.

The legislation would impact the health care coverage of millions of Americans, including people living with cystic fibrosis.