We used social media to ask you what you're thankful for this year. Check out some of your highlights!
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The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
Going on a camping trip is a great way to relax and unplug from the daily grind, but when you have cystic fibrosis, unplugging requires some planning and strategy.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
Finding a Balance Between CF and High School
Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making.
There are many people in the cystic fibrosis community whom I believe possess hero-like qualities that I admire and who inspire me in my everyday life. I feel so fortunate for having crossed paths with them, and I very much look forward to meeting many more in this journey that I call life.
Time after time, cystic fibrosis has shown me that what I thought was important could change with changing circumstances.
As a real estate broker, I was already familiar with the first-time home buying process when my husband and I began our own house search. But little did I know that my CF would make me my toughest client yet.
These days when I post in any CF group, I read my posts several times over, making sure that I'm not incentivizing bullies to jump all over them. It's a shame that I have to waste hours each week concerning myself with how someone will interpret something I write.