If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
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May 6, 2011
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Nov. 2, 2011
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Oct. 25, 2011
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Lisa C. Greene, M.A., CFLE
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5 min read
Our community's shared journey makes us unique and unites us in the hardest of times for some and the most hopeful for others.
Catherine C. McLoud
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5 min read
Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
Jaclyn Strube
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5 min read
Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.
Katherine Tuggle, Ph.D.
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7 min read
For those of us without a medication that targets our cystic fibrosis mutation, it's important to remember that our life with CF is a marathon.
Jerry Cahill
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4 min read