Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.
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Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.
The studies aim to improve our understanding of a common cause of lung transplant failures, a condition known as chronic lung allograft dysfunction (CLAD).
The Cystic Fibrosis Foundation has been carefully following the story of a 10-year-old girl with cystic fibrosis who has severe lung disease and has been on a pediatric lung transplant list for 18 months. Her family has organized an online petition and filed a lawsuit to help her receive an adult donor lung.
It is important to understand that having a lung transplant can be expensive before, during, and after the transplant. Your health insurance may cover many of the costs, but not all of them.
Whether you're considering a lung transplant or maintaining your health if you've had a transplant, this list can help you learn about transplant centers, including the one your cystic fibrosis care team may have referred you to.
You can best manage your health when you know what to expect, what resources you can use, and a community of people with whom you can share your experiences.
There are many things that you can do while waiting for donor lungs to become available. Preparing for a lung transplant includes maintaining your health, performing your routine cystic fibrosis care, and being ready to respond when donor lungs are available.
Transplant and recovery is physically and emotionally stressful. But, there are things you can do to help you cope with the stress and the changes in your life that a transplant can bring.
Life after transplant includes taking care of your new lungs — and your cystic fibrosis.