Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.
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Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
This year at the 30th Annual North American Cystic Fibrosis Conference in Orlando we have three sessions just for the online cystic fibrosis community.
How do you define passion? For me, it's simple. It's the things that I enjoy, the things that I love and the things that I want to do continuously. However, trying to figure out what those things are is not so simple.
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
In a culture flooded with advertisements about the perfect body, secret weight-loss tricks and fad diets, our cultural ideals of weight are often skewed to an image that is far from healthy.
Dietitian Gretchen Garlow demystifies the hottest food trends for people with cystic fibrosis and invites questions for future blog posts.
There was a clear message in today's second plenary at NACFC: no matter what role you play -- physician, scientist, person living with CF, parent, fundraiser, regulator -- it is going to take a tremendous team effort to advance new therapies as fast as possible and eventually find a cure for CF.
My desire to help others with CF learn how to eat well led me to make a hard personal decision -- one that continues to pay off.
Holiday foods may be wonderful to eat, but they also can be very high in fat. Making sure that you take enough enzymes with these special meals could help you avoid unnecessary issues during a time reserved for loved ones.