When I went off to college it was up to me to manage my cystic fibrosis for the first time without help from my family. I felt fine after skipping my medications and decided to stop using my noisy vest because it embarrassed me, and I wanted to make friends at my new school. As a result, I stayed in the hospital for a few weeks and left with a new perspective on life.
Site Search
During COVID, it became apparent who in our lives supported the decisions we made for my wife’s health.
Tomorrow's Leaders is a community of young professionals who come together to make a difference for those living with cystic fibrosis while growing their network, making personal connections, and developing professional skills.
I spent 2020 in COVID-19 quarantine and in the hospital separated from my family while waiting for transplant. I'm very grateful that the call came and I have new lungs -- and a new life.
My school gave students a choice of how they want to go back to school: virtually or in person. After considering what made sense for my CF, learning style, and mental health, I decided to attend school in person.
When my university first shut down in March because of COVID-19, I thought our quarantine would be temporary. Now I am contemplating a fully online fall semester. I'm calling on all colleges to continue to accommodate the needs of their high-risk students.
It's troubling that many people without chronic illness feel wearing a mask is too much of an inconvenience for them.
Even though I've been vaccinated against COVID-19, I've been using a risk assessment tool to try to make sure that I'm still being as safe as possible.
I was able to take part in a COVID-19 vaccine clinical trial. Here's what I went through and learned.
I was prepared to experience side effects when I was vaccinated against COVID-19, and -- although they were significant to me -- I knew that it was my immune system strongly responding to the vaccine.