Medicare can be a nuanced program to understand. Knowing the basics on what makes you eligible, and when to sign up can help.
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Teams of dedicated health care professionals in a nationwide network of more than 130 Cystic Fibrosis Foundation-accredited care centers partner with people with CF and their families to provide expert care and specialized disease management.
Understanding your insurance coverage can go a long way in helping you to anticipate your costs for things like doctor appointments, medication refills, and other services. We’ve put together the basics to help break it all down.
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
When considering making a change to your health insurance coverage or enrolling in a plan, it is important to know about the annual open enrollment period and when those changes can be made.
Understanding insurance basics and knowing what to look for when choosing new health coverage can help you get a plan that best suits your individual needs.
Quarterly visits to a CF Foundation-accredited care center are the foundation of your treatment plan. By partnering with your care team, you can also adjust your treatment plan as new therapies become available, or your needs change over time.
Whether you're considering a lung transplant or maintaining your health if you've had a transplant, this list can help you learn about transplant centers, including the one your cystic fibrosis care team may have referred you to.
People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.