Sometimes, being the “squeaky wheel” is the only way to make a positive change.
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We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
When our son was diagnosed with CF, the clinic director sat with me for hours answering my questions. Since that day, I have wanted to bottle up his advice and become a voice of encouragement for new CF parents.
When he isn't with his family or at work, Jeff Burnett can be found leading a team of 30 cyclists and training for the Cystic Fibrosis Foundation's CF Cycle for Life event.
A reality show inspired this family to create an ingenious fundraising and awareness event for cystic fibrosis.
More than 800 guests gathered to celebrate the therapeutic benefits that surfing brings to people with CF at the 8th annual Pipeline to a Cure gala.
While I would have never asked for cystic fibrosis to enter my life, there is not a single day that goes by that I do not thank my lucky stars that I have the Foundation on my side.
Today, I no longer feel tied to a hospital bed and a grim diagnosis, and I have you to thank.