Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
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Revised Law Includes Designated Funding for Rare Diseases
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New Patient Data Posted Online Shows Improvements Across Care Center Network
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When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
James Holoubek
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