If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
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Being a part of the CF Foundation has given me so much more than I could have ever imagined. That is why my wife, Nanette, and I have made a commitment to people with cystic fibrosis for years to come by making a legacy gift, an enduring statement of our values.
Having spent her career working for a cure for cystic fibrosis, Patty Burks is still not content. She wants to remember her son in a way that makes a difference for others. That's why she has made the CF Foundation a beneficiary of her life insurance policy. This gift to the Foundation meets a need in her heart.
Read how one grandmother is adding tomorrows.
Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
Meet my son Kiran, a happy, charming and adorable 18-month-old with CF. We're telling his story this #GivingTuesday to raise awareness and funds for the CF Foundation. Donate today.
Over the past 20 years, I've learned a lot when it comes to raising funds to support my daughter, who has cystic fibrosis. Here are some tips for connecting with sponsors to ensure fundraising success.
After my son, Zach, was diagnosed with this cystic fibrosis, my wife and I began to understand the many challenges associated with it. We quickly realized we wanted to support the Cystic Fibrosis Foundation so we could help our son in every way possible. Here are some fundraising ideas that were simple, yet effective, for us in securing donations.
I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.