As children with cystic fibrosis transition toward greater independence at school and at home, they will also take greater responsibility in managing their disease.
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Delayed puberty is common among young men with CF, but working with your CF care team to ensure you get good nutrition can help encourage healthy development and growth.
To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
At this age, your child with cystic fibrosis is ready to transition from breast milk or formula to whole milk or a high-calorie supplement. Encourage independent eating. Create a consistent schedule and mealtime expectations.
Receiving a denial for a service or treatment from your insurance company can leave you with many questions. Fortunately, most insurers have a process, called an appeal, by which you can ask them to reconsider their decision to deny coverage.
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.
People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.