I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another.
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James Lawlor
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10 min read
To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
Bianca Maldonado-Dequin
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4 min read
Hearing from diverse voices is critical as we continue our journey to listen, learn, and take action against racism and discrimination.
News
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Nov. 18, 2020
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3 min read
With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.
Jaclyn Strube
Major Strube
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6 min read
Every spring, the cystic fibrosis community comes together for National Volunteer Week. We are so grateful for our incredible volunteers and their dedication to the CF community.
Caring for a child with CF can be a lot to juggle — from the many medications and daily treatments to the endless doctor's appointments. But I’ve found a system that helps me stay organized and stress-free so that I can focus on what really matters.
Marlenny Linda De La Cruz
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5 min read