Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here's why I decided to say yes.
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As part of its Building Trust Video series, the Better Business Bureau's (BBB) Wise Giving Alliance is featuring an interview with Preston W. Campbell, III, M.D., president and CEO of the Cystic Fibrosis Foundation.
Many people have asked me why I would want to climb the highest mountain in Africa with no climbing experience. The answer is simple: an undeniable love for my daughter, Jennifer, and a determination to raise money for all those living with cystic fibrosis.
The Cystic Fibrosis Foundation invited more than 100 scientists to its research conference in Savannah, Ga., last month to discuss recent advancements in gene therapy, gene editing and stem-cell biology and how these new technologies could be applied to finding a one-time cure for cystic fibrosis.
Garry Shandling leaves a legacy gift to the Foundation in honor of his late brother, who had cystic fibrosis.
The Associated Press published a story this week highlighting the Cystic Fibrosis Foundation's "groundbreaking" drug development model and its role in developing CF treatments that target the root cause of the disease.
The Cystic Fibrosis Foundation has entered into an agreement with Synspira Therapeutics Inc. to develop a non-porcine enzyme replacement therapy to offer an alternative to people with cystic fibrosis who cannot digest food properly.
At the 2016 North American Cystic Fibrosis Conference (NACFC) held on Oct. 27-29 in Orlando, Fla., the Cystic Fibrosis Foundation announced the recipients of seven awards given to members of the research and medical community whose achievements have helped advance cystic fibrosis research and care.
Ginger Birnbaum and Mike Beatty lead efforts in Dallas for banner conference -- "teamMATEs for a Cure.”
I didn't always think that Teen Advocacy Day could make a difference. Turns out I was wrong.