An Impact Grant from the CF Foundation allowed my program, the Mothers' Retreat Program, to provide a space for moms of children with CF to get together and learn new approaches for addressing self-care, anxiety, and depression.
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Over the last 10 years, I've gone from only interacting with local people with cystic fibrosis to joining hundreds of people with CF around the world to help build an incredible online community. This community has helped me through hard times, and I can't wait to see what we do next.
When my sister passed away last year from cystic fibrosis, my family discovered that the computer with her list of requested arrangements had been wiped out. Little did I know, the damage control we did in the wake of this would take me on a very special journey.
Discovering my passion for acting unlocked my passion for life.
Going from being pretty healthy for most of my life to being admitted to the hospital was scary and shocking. I decided to get help by asking for a peer mentor -- someone who also has cystic fibrosis. What I didn't expect was that I'd get amazing support and advice about CF and so much more.
I respond with love when pain drives people to make fun of my cystic fibrosis.
Looking for the right partner when you are sick comes with so many challenges. Despite CF's obstacles, being patient and honest can help you find a healthy and loving relationship that is right for both of you.
Growing up with my sister, who has cystic fibrosis, has its challenges. Although it is sometimes difficult to watch her have to miss out on the things she loves, I've been able to learn so much and connect with many other amazing family members of those with CF.
Although I asked for help to manage the physical aspects of my disease, it took a long time for me to feel comfortable asking for support for the emotional impact of cystic fibrosis.
On my first international trip, I found myself in an interrogation room explaining my port to security officers.