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The Cystic Fibrosis Therapeutics Development Network is the largest CF clinical trials network in the world. We bring together experts from across the country to evaluate the safety and effectiveness of new CF therapies through clinical studies.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
To treat cystic fibrosis, scientists are exploring ways to use gene editing, which would correct mutations in the CFTR gene, or gene therapy, which would provide a correct copy of the CFTR gene to cells. First, they must find a way to deliver the treatment to the right cells.
Close to 40,000 people in the U.S. have cystic fibrosis, a rare genetic disease. The majority of people with CF are diagnosed by age 2 thanks to newborn screening tests. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make decisions about your health care.
Curing cystic fibrosis and caring for those with the disease is a community effort and takes many resources. That's why we're inviting businesses to join us in our search for a cure. Become a corporate champion today and help us realize our shared dream — a cure for cystic fibrosis.
Living with a chronic disease, such as cystic fibrosis, can be emotionally challenging. Although moments of sadness and anxiety due to the uncertainty of your health may come and go, depression and persistent anxiety should be treated as part of your overall health and emotional wellness.
Cystic fibrosis affects multiple organs and its complications go beyond the lungs and complications can include colorectal cancer and CF-related diabetes.
Although CF may have consequences for your reproductive health, it does not diminish sexual performance or the desire for intimacy. People with CF may worry about experiencing shortness of breath, coughing or hemoptysis (coughing up blood or blood-stained mucus), but these problems should not keep them from enjoying a normal, fulfilling sex life.