Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
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In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
My life milestones wouldn't have been possible without the drive and dedication of the generous people who donate to the Cystic Fibrosis Foundation.
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
Today, I no longer feel tied to a hospital bed and a grim diagnosis, and I have you to thank.
This year our CF Foundation employee Great Strides team adopted a “Star Wars” theme and, believe me, we went all out to make the experience extra special and out of this world. See for yourself!
My transition from pediatric to adult care filled me with anxiety and proved to be much more difficult than how the experience was described to me. But, when care centers work together with their patients and listen to their concerns, we can improve cystic fibrosis care and address concerns much sooner.