The CF Community Blog is all about sharing the experiences, reflections, and perspectives of the cystic fibrosis community.
Site Search
Many of us experienced powerful moments during last year's virtual BreatheCon event. We hope you'll join us for this year's BreatheCon that will allow you to share your struggles and triumphs with other people who have CF.
Unless you have cystic fibrosis or live with someone who does, it's hard to truly understand the full impact of this disease. Through the power of storytelling, these CF community members are helping to bridge that gap of understanding. Check out the latest books and films created by people intimately familiar with CF.
If you have cystic fibrosis like I do, then you know how important it is to protect our health care. That's why we must advocate for three key policy principles that are critical to allowing people with CF to access the high-quality, specialized care we need.
Two 2017 Volunteer Leadership Conference attendees, one a veteran attendee and another a newcomer, reflect on their experiences in Dallas, Texas.
The cystic fibrosis community is a pretty spectacular bunch, whether you are living with this disease or helping to raise awareness and funds every day to fight for a cure. I'm excited to highlight a small sampling of the remarkable things you are doing in support of people with CF.
Members of the cystic fibrosis community can have an even greater say in research when they vote for the Insight CF questions they most want answered. Readers have until June 21 to vote.
I never realized how important it was to share my family's story of cystic fibrosis until I started participating in Teen Advocacy Day. This experience helped me find my voice.
Reaching new milestones in my life as a 24-year-old with cystic fibrosis -- graduating college, starting my career -- has been rewarding, but it's never been easy. The opportunity to share my experiences and learn from others is why I'm thrilled to help people with CF connect at CF MiniCon: Young Adult on July 22.
As an adult with cystic fibrosis, I know just how powerful and creative the CF community can be. That's why I'm excited to announce the four 2017 Impact Grant awardees who are making a positive impact on the CF community.