We are excited that this spring, in Washington, DC, from March 13-16, 2024, there will be an enriched conference experience that combines March on the Hill (MOH) and our Volunteer Leadership Conference (VLC) into one extraordinary event for our leading volunteers with the theme of Hope in Action.
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National Teams raise awareness about cystic fibrosis, and raise funds to support the Foundation's mission to find a cure for CF.
When my daughter was diagnosed with cystic fibrosis, I found it difficult to explain this disease to my parents in Spanish, and I also felt alone in my rural community. That is why I think it is important to bring CF awareness to the Hispanic community.
As a black man with cystic fibrosis, I am in a minority group within a minority group. I waited my whole life to find someone I could easily relate to until I happened upon a Facebook group for post-transplant patients.
My children’s experiences being African American with cystic fibrosis motivated me to speak out and ignite change for families who are Black, Indigenous, and people of color (BIPOC) in the CF community.
The Drive is the Cystic Fibrosis Foundation’s ultimate golf experience, held in the fall at renowned golf courses around the United States.
Our corporate champions are an important part of our progress — with corporate supporters by our side, we continue to advance our goal — to make CF stand for Cure Found.
Since 2011, the Foundation has awarded $2.5 million across 35 different projects to improve cystic fibrosis newborn screening across the country.