Learning that your child has cystic fibrosis can be overwhelming. You may feel sad, guilty, scared, or even angry, but you are not alone. We are here to help.
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Here's what you need to know about the four CFTR (cystic fibrosis transmembrane conductance regulator) modulators.
7 min read
News
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May 6, 2011
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Press Release
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Nov. 2, 2011
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News
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Nov. 8, 2011
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March 4, 2011
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Oct. 25, 2011
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2 min read
If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
Lisa C. Greene, M.A., CFLE
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5 min read
Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.
Katherine Tuggle, Ph.D.
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7 min read
For those of us without a medication that targets our cystic fibrosis mutation, it's important to remember that our life with CF is a marathon.
Jerry Cahill
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4 min read