When Rickey Powell’s first child, Miles, was born, he never anticipated that Miles would spend nearly a month in the NICU. Miles was not gaining weight and, after several long weeks, was diagnosed with cystic fibrosis. Two years later, Rickey’s second child, Marley, was born. She, too, was born with CF.
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Mascaro Construction employees have a strong track record of giving back to advance the CF Foundation’s mission. A giving culture is what the late founder, Jack Mascaro, first established when he started the highly successful company.
NextBreath is for people with cystic fibrosis who are living with advanced disease or experiencing lung health complications and for their family members and caregivers.
CF FamilyCon welcomes the whole CF family — people with cystic fibrosis and the friends and family who love them.
Tomorrow's Leaders is a community of young professionals who come together to make a difference for those living with cystic fibrosis while growing their network, making personal connections, and developing professional skills.
A virtual program for current and recent college students who want to continue building new leadership, advocacy, and fundraising skills to make a difference on their campuses and beyond.
Starting solid foods is very important for the development and health of babies with cystic fibrosis.
At this age, you will want to start serving high-calorie finger foods and gradually boost calories with safe solid foods. It is important to create a routine and set time limits at mealtime.
Children with cystic fibrosis ages 3 to 7 learn by watching their family, parents, teachers, and friends. They like to be independent but need limits and structure. Have planned meals and snacks.
To help ensure your child's social, emotional, medical, and educational needs are being met at school, you may consider requesting an evaluation for an individualized education program or a 504 plan through your child's school.