When participating in a clinical trial, nothing is more important than your safety. We go the extra mile when it comes to protecting study volunteers.
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When you have cystic fibrosis, there are potential complications related to pregnancy. But as part of the planning process, you can learn more about these complications and how to partner with your CF care team to evaluate these risks based on your personal situation.
Women with CF have thicker cervical mucus and can have ovulation issues due to poor nutrition. However, the majority of women with CF are fertile and can become pregnant if appropriate contraception is not used.
While 97-98 percent of men with cystic fibrosis are infertile, they can still enjoy normal, healthy sex lives and have biological children with the help of assisted reproductive technology (ART).
Learning more about the financial, health, lifestyle, time-management, and other implications of being a parent with cystic fibrosis can help you decide if having kids is right for you.
Theratyping matches therapies, or medications, to specific types of mutations. The primary goal of theratyping is to identify which mutations respond to certain CFTR modulators, thereby helping people with rare CFTR mutations gain access to already approved modulators quickly and safely.
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Dr. Dorothy Andersen first wrote about cystic fibrosis in 1938, and our understanding of the disease has significantly evolved since. There are still many misconceptions about what CF looks like today, from the person who lives with the disease to how it manifests.
When you are deciding whether to join a clinical trial, you should consider logistics.