In the letter to the Federal Trade Commission, the Cystic Fibrosis Foundation asks the commissioner to take appropriate enforcement action against alternative funding programs, emphasizing the harmful consequences of these programs on people with CF.
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The Cystic Fibrosis Foundation joined other patient advocacy organizations in providing comments to Nevada’s Department of Health and Human Services requesting pass-through funds to implement a coverage program that would improve access to affordable coverage in the state.
Ad hoc patient advocacy coalition provided feedback to the U.S. Department of Health and Human Services on North Carolina’s proposal to provide continuous program eligibility for children.
Ad hoc patient advocacy coalition provided feedback to the U.S. Department of Health and Human Services on Maryland’s proposal to make permanent policies that would make the program eligibility review process timelier and more efficient, reducing the administration burden faced by the patient.
In a letter to the Senate Finance Committee, the Cystic Fibrosis Foundation, along with an ad hoc patient coalition, cited support for the provision included in the Modernizing and Ensuring PBM Accountability Act that would prohibit pharmacy benefit managers from being compensated for Medicare Part D covered drugs based on the manufacturer’s lis
In their response to the House Budget Committee’s request, the Partnership for Protecting Coverage outlined three overarching principles to guide health care reform and improve the U.S. health care system.
Partnership for Protecting Coverage statement is in response to a hearing entitled “Reduced Care for Patients: Fallout from Flawed Implementation of the Surprise Medical Bill Protections.”
In feedback provided to the U.S.
The Cystic Fibrosis Foundation joined an ad hoc coalition of stakeholders in calling for strong support of newborn screening programs as Congress continues ongoing negotiations for the Fiscal Year 2024 Labor, Health and Human Services, and Education Appropriations bill.
The Cystic Fibrosis Foundation sent a letter to the Texas Insurance Commission requesting clarity on which insurance plans are impacted by HB99, which requires insurers to apply third-party assistance to out-of-pocket maximums and other cost-sharing requirements.