No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
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It is hard to know how much to share with our kids. We want to protect them, but we also need to give them age-appropriate information or else their imaginations will run wild.
Sending our son to school was scary, but we have a plan to keep him healthy.
If you want your kids to eat all of their dessert instead of all their vegetables and have a kitchen refrigerator that looks like a pharmacy, then this list is for you.
I felt badly when my son Major was diagnosed with CF, until I realized it was his fight.
You may be surprised to learn that this year, my husband and I celebrated the two-year anniversary of our son's CF diagnosis. How is it possible to celebrate a day that brings me so much pain to remember, you might ask? Because it's a milestone.
After my newborn son was diagnosed with cystic fibrosis, I had to take another look at the contents of my diaper bag. There are now five things that I am almost never without when we leave the house.
Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.